Author: Enrique Carrasco

Wheelchairs + Tennis = Life Narratives #10 The War Zone

Like Brian and Alan, I came face to face with violence, the violence of Guillain-Barré Syndrome. I felt like I was in a war zone, and the other patients in the ICU were my fellow combatants. Although we had different injuries resulting from combat, we were fighting the same enemy: death. As my pacemaker, the dopamine drip, the steroids, the antibiotics, the feeding tube, the ventilator, the cooling bed, and the medical staff kept me alive, I listened as nurses and doctors visited the other wounded soldiers.

Sometime after I was admitted, another soldier came in, a young man who had been in a motorcycle accident. When the nurses happened to angle me just right on my bed, I could see into his room on occasion—my eyesight had returned by then. He was smashed up pretty badly with an apparent head injury, his head almost completely taped up. Like me, he was “tubed up.” I could overhear that he had tubes in his chest to drain blood and fluid from his lungs. Sometimes he would yell out something incomprehensible. I wasn’t sure he even knew he was doing it.

I began to root for him. Whenever I came to, I hoped that I could see him or, if I couldn’t, at least hear staff attending to him. “Stay alive!” I shouted at him from inside myself. I quickly realized that I needed him to make it because if he could do it, I could, too. We could survive the brutal war zone together. “We can do it! Just hang on! Stay with me!”

But one afternoon, I saw nurses and doctors rushing in and out of his room.

No.

It seemed like just moments later his family flooded into his room.

No, no!

They closed the door.

“Fight, goddammit!”

Then he coded.

The shrieks and wails of shock and loss pierced every corner of the ward.

“You fuck, you sorry-ass fuck, why couldn’t you hold on?? Why??”

At that moment, I felt so alone.

And so frightened that I wouldn’t make it out of the war zone.

Wheelchairs + Tennis = Life Narratives #9 Alan Klaus and the “16-trap”

13620001_10154295122579919_5607232858839636359_nIn my previous post, I introduced you to Brian McMillan and the motorcycle accident that left him a paraplegic. That traumatic event triggered a trajectory in his life narrative that would land him in a wheelchair tennis tournament in Kansas City.

Brian’s life narrative can’t exist in isolation. Think about it. His life narrative is a “story.”  Stories happen and are given meaning via inter-connected spaces filled with the narratives of other people. Put another way, you, as a human being, are given meaning by others. So we need other people and spaces to give meaning to Brian, the human being with a life narrative. That’s where Alan Klaus comes in. Here’s the continuation of chapter three of my book:

As Brian was making his way through life and eventually falling in love with motorcycles, one Alan Klaus was on his life’s journey, which took a turn early in his life with the “16-trap.”

Alan’s Narrative

Alan was born in Beatrice (BeAtrice) Nebraska, a town 12,000 people. His dad delivered bread, and his mom was a medical transcriptionist. An all-around athlete, Alan played football, basketball, baseball, and tennis. In high school, his two major sports were the glory sports for a small town: football and basketball. The Orangemen of Beatrice Senior High had a loyal fan base, for football as many as 2000 people at every game. Life was good in the heartland for the young athlete.

Then came a pivotal moment in Alan’s life, only he didn’t know it at the time. It happened in the homecoming football game in his senior year, a Friday night duel in October, 1966. Earlier in the day, the homecoming parade proudly processed through downtown Beatrice, complete with floats and convertibles holding the homecoming king and queen candidates. Alan, the team’s quarterback, was among them.

It was a great night for an epic David v. Goliath football matchup. The sky was clear, and the night air calm and warm. The Orangemen, one of the smallest Class A schools in the state, were set to battle it out with Lincoln’s Northeast High, one of the state’s largest Class A schools and perennial state champions, holding the state’s No. 1 spot that year. Both schools were loaded with talent. But Lincoln’s team was anchored by Wally Winter, an offensive/defensive linesman who would go on to be an All American at Nebraska University. He was a beast.

In the first half of the game, Northeast predictably went up by two touchdowns. With only minutes left in the first half, the Orangemen pushed their way down the field. The fans roared, giving Alan and his team a much needed adrenalin rush. To take advantage of the momentum, Alan’s coach sent in a play called the “16-trap,” which called for Alan to fake a hand-off to the half-back on his left side, then pivot to the right and run behind his pulling guard. But guess who was waiting for Alan. The beast. Slam! Crunch! Thud. Silence. . . After his teammates dug Alan out of ground, he managed to take his team forward and score a touchdown. But the Orangemen ultimately succumbed 35-14 to the barbarians from Lincoln.

Alan’s back was killing him after the game. The following Monday he could barely walk. It was time to see the doctors. An x-ray showed a crack in his tailbone, and a back specialist diagnosed Alan with spondylolisthesis, a complication of the vertebra. The docs told him he would need surgery if he wanted to play football again. He went for it, and the surgeon chipped some bone from Alan’s hip and grafted it onto the cracked tailbone, which left Alan in a body cast until the end of July, 1967.

Not exactly a convenient time to be bound up from his hips to his armpits. Alan had been recruited to play football for the Air Force Academy. But because of the body cast, the coaches told him to wait a year, go to their prep school, and then start at the Academy. That plan didn’t sit well with the impatient athlete. So off he went to Valparaiso University on an academic scholarship, with the goal of playing both football and basketball. He wasn’t ready to play football when he got there—he was only a month out of the body cast, but he made the freshman basketball team. He played well in the first game against the junior varsity in October of ‘67, or so he thought.

Alan was at his dorm the next day when the freshman coach called. He said he wanted Alan to come in before practice for a chat. About his good play? Strategy for the next game? Hmmm . . . At the meeting he received what at that time Alan thought was devastating news: The team physician had seen Alan play the night before and concluded that because of the back injury Alan would be prohibited from playing any sports at Valparaiso. “What??” The only reason he had the operation was to play college athletics. He gave them letters from his doctors in Nebraska. Nope. “Before the end of my first college semester, I was put out to pasture.”

A frustrated Alan Klaus talked to Greg, his roommate and best friend at Valparaiso who suffered a career-ending football injury in his freshman year. Greg said he was going to transfer to William Jewell College in Kansas City. “Come with,” he suggested to his friend. Alan talked to the coaches at William Jewell and they said he could play as long as he could provide the approval papers from his doctors, which he did. Alan transferred after his freshman year at Valpo, and the athlete in him set his mind on preparing for basketball. “I’m coming back.”

It happened again. Because of college rules, Alan couldn’t play athletics during the fall semester of ’68, but he could practice with the basketball team. Right before the Christmas break, Alan was playing in an intramural basketball game with his fraternity brothers when he went up for a jump shot. The opposing player cut Alan’s legs out from under him and Alan landed on the court, hands first. Crack. It was over for Alan, if not for the rest of his athletic career, at least for his sophomore year. At that time in his life, sports was front and center. It had been his identity since high school. And yet again he faced a void.

What happens to so many of us when we’re robbed of what we see in the mirror of life—in Alan’s case a kickass athlete? Deep depression? Who would blame us?  Who would blame Alan? He stopped going to classes. As he slid deeper into the pit of depression, he had thoughts of killing himself. He talked to Greg. “If you take this to Jesus, he’ll help you.” Greg gave Alan the book, “Dare to Live” by Bruce Larson. He spent the whole night reading the book alone in his room. That night, Alan met up with Jesus. And that night, peace came to Alan.

Alan went on to letter in basketball and baseball at William Jewell. The tennis coach asked him to play, but Alan couldn’t find the time. Ehhh, it’s just tennis. He graduated from William Jewell in 1971, went on to get his MA in Clinical Psychology, and married Janene, his high school sweetheart. He started playing tennis regularly when he was about thirty-years old. Always the athlete, Alan swung his way into the top echelons of amateur tennis.

Life was good again for Alan. For him, the “16-trap” was not a trap at all. At his high school football team’s 40th reunion in 2006—four years after Brian’s violent encounter with a tree, Alan spoke to his former coach, “Coach, I want to thank you for calling the 16-trap in our Homecoming game in October 1966. Little did you know that that play changed my life and has resulted in the wife and children I have, the city in which I live, the job I have, and my eternal destination.”

On Being A Female Law Student—and Puerto Rican #4 The Duties of A Role Model: Are You Legit?

Here’s another excerpt from Kristymarie Shipley’s article in which she explores the complexities of navigating through the challenges of law school as a woman of color. In particular, she looks at “[t]he flipside of fear and anxiety of class participation [as] a sense of duty. This duty to participate encompasses a sense of responsibility to your own otherness that does not just stop with class participation but also bleeds into law school involvement, which may affect classroom performance.” As I read this part of her article and its focus on duty, I was reminded of the raging debate in the 1990s over whether persons of color should be role models with certain duties. I also thought about “the box.” What? Just wait. Concentrate on Kristymarie.

A.    Class Participation as a Duty

“Underrepresented students often feel a duty to achieve, not just for themselves, but also for those that come after. Barbara Smith, an activist at the intersection of race, sex, and sexual orientation, wrote that she was enraged when she realized that “black women writers, academics, and politicos who protect their closets never think about people like [oppressed students] or about how their silences contribute to the silencing of others.” This piece also inspired Angela D. Gilmore to share the anxiety she experienced in law school and in the legal profession as a lesbian black female constantly wavering between performing her identity loudly and remaining silent. Once again, these scholars reinforce the idea that participating and speaking up is a duty owed to others in one’s community, aimed at making sure they do not feel like that they must remain silent as well.

This concept of duty extends beyond that owed to one’s underrepresented community and those that will follow in one’s steps. It includes feeling responsible for enriching the majority’s educational experience. As Onwuachi-Willig explains, silence could deprive the conversation of a valuable fresh perspective.

Admitting token numbers of racially and gender diverse students belies law schools’ claims to prepare students for the work environment and also leads diverse candidates to feel isolated. “Critical mass,” or meaningful representation, is achieved when there is sufficient representation of underrepresented minority students to encourage their class participation and counteract isolation. The concept is that if underrepresented candidates are admitted in sufficient numbers, the educational experience of all candidates is enriched through exposure to diverse perspectives and cross-racial and cross-gendered interactions. Critical mass creates an environment that “promotes learning outcomes, and better prepares students for an increasingly diverse workforce and society, and better prepares them as professionals.” These interactions prepare all candidates to work in a global market and become good citizens. However, lack of critical mass often turns the duty of class participation into a spokesperson’s burden.

B.    When the Duty Becomes a Burden

We were sitting in class. Out of just under twenty students, only two of us would be considered minorities: a Korean man and a Puerto Rican woman. We discussed the calculation of remedies for wrongful death. I seldom speak in class. My feedback in the past had been somewhat quickly dismissed. On this day, the professor explained that, when calculating lost wages, if the victim is black, the defendant should be able to present evidence that, on average, black men do not live as long as white men. What I hear is: the black victim would not have lived that long anyway so his family should receive less in damages. I raise my hand. How is that fair?

To provide some context, this discussion occurred in the wake of the shooting of Michael Brown. I argued that providing information on differences in life expectancy based on racial markers to a jury is more prejudicial than probative. It ignores the systems of oppression that result in such differences. A defendant should not benefit from those systems. For example, imagine that Police Officer Darren Wilson’s conduct had been determined to be willful and unreasonable (out goes immunity), and Michael Brown’s family sued for wrongful death (in this hypothetical he is gainfully employed and has dependents). Officer Wilson, as a defendant, should not be able to escape financial responsibility with an argument that black men die at a younger age, especially when actions like his are one of the reasons why black men die at a younger age. The professor characterized life expectancy differences as factual, and moved on to comparisons of obese black men to fit white men who live longer and why these numbers were important. I wondered, “How can they be important when you are comparing apples and oranges?” The class moved on but I was left reeling. The focus should have been on health or weight if that was the issue, not on race.

At that moment, I felt like class participation became more of a risk than a reward. The professor quickly dismissed my comment and I felt I had come off as too personally invested (since my husband is black) to have a conversation about the legal merits of a certain piece of evidence. Because I continued to bring the issue back to the racial component and whether the data was necessary, I felt I was coming off as combative. As I tuned out the rest of the discussion, I felt I may have come off as immature. Because my point was not coming across, or getting across, I went back to not speaking in class—to silence. Because I am personally invested, I thought of the perfect point: “Professor, you just said my husband’s life is worth less.” Because I am combative, I thought: “Professor, you have disregarded my point of view, diminished my racial and social concerns, and continually tried to reduce this issue to dollars and cents when wrongful death is about the life lost.” Even more I felt like saying: “Professor, when you ended the conversation by saying ‘everything has a dollar value, even human life,’ you were flippant about your student. While it might have been easy to discuss this man’s life in terms of dollars and cents because he is an abstract black man to whom you do not relate, that black man is someone to somebody.”

I stayed quiet because I felt naïve. I felt like the representative for all things minority. I felt like it was my responsibility to rescue the learning experience and I failed. I felt like I became the hypothetical.

A racialized and gendered candidate often becomes a spokesperson, or a hypothetical, rather than an individual. By challenging the authority figure in the room, I felt I had surely tainted the Professor’s perspective of who I was—a perspective that could leave the classroom and venture into the legal community. What might have been a regular class discussion to every other student was to me, a highly visible invisible minority, a failure to carry my burden as a minority student. I had failed to represent minorities by not having the legal wherewithal to convince the Professor that the data was prejudicial and not apt for a jury. I was left with a burden I did not feel I should have had to shoulder on my own. By simply not participating, I refused to take that burden on. In the process, I became isolated.”

Pretty compelling stuff, right? Kristymarie packs a lot of thoughtful points and observations into those few paragraphs. And lest you think she’s just baring it all like a pathetic Facebook posting looking for a thousand likes and a hundred comments, she’s effectively using the storytelling technique, used often in Critical Race Theory (CRT), to explore the multiple dimensions of a problem or situation, here a woman of color in law school, and in a classroom, who also identifies as a Puerto Rican and is married to an African American.

Now I said her excerpt reminded me of the role model debate back in the day and “the box,” Let’s have a look.

About two years after I made tenure in 1994, a debate arose in academia regarding the question whether persons of color should willingly be “role models” for their communities. Richard Delgado, a leading voice in CRT, said “hell no!” Well, he didn’t actually say that… But he could have!

In any event, the debate meant a lot to me—and to most persons of color—because of the various roles I played as a Latino. When I graduated from Georgetown University Law Center I was recognized for my work with the Latino law student group there. At Arnold & Porter, a large D.C. law firm I joined after law school, I established a mentor program sponsored by the firm that matched Latino/a law students in the area’s law schools with local Latino/a lawyers. When I joined the faculty at the University of Iowa College of Law in 1990, I did so not only as a budding scholar in international finance but also as a person of color with a record of engagement in the Latino legal community.

I never thought of myself as a role model. I was kinda busy with a bunch of little things. Like getting through law school just after becoming a quadriplegic, surviving in a Big Law firm where sleep is a luxury, trying to write pre-tenure pieces that would change the world as we know it. That sort of thing. But had I thought about it, I would’ve said being a role model was pretty cool. If what I was doing could inspire just one student of color—who may happen to be in a wheelchair—to follow in my footsteps, right on. I’ll take that.

But Delgado wasn’t down with it. He gave a number of reasons for rejecting the idea, such as uplifting “your entire people” is “tough,” “sweaty work.” Sweaty? First, the idea of a sweaty prof is gross. Second, I don’t see a prof working up a sweat while he’s typing away in his office, unless he’s writing an article that’ll decide whether he’ll get tenure and thereafter be able to do nothing more than stare at his navel.

Is it tough to be a role model? Hell, yes! And I really said that.

Delgado gave other reasons: As a role model you’re treated as a means to an end, even by your own people, e.g., you’re expected to give rousing speeches and serve on panels.  On top of that, you’re expected to do everything that your white counterparts do. Lots of stress and exhaustion. But the most biting criticism was essentially that role models are “flunkies for the man.” Well, he didn’t actually that… But it has a nice ring to it!

Really, though, he said whites use the role model concept to justify and prop up “majoritarian social mores,” and perpetuate the lie of equal-opportunity, a lie if you look at the actual number of people of color that have made it in the white world.

You can see these themes in Kristymarie’s excerpt. Was she recruited to the College of Law to be a role model, or at least to be groomed as one? Hmmm… She felt like she was “the representative for all things minority.” She felt like she had the “responsibility to rescue the learning experience.” She became “a spokesperson, or a hypothetical, rather than an individual.”  The duties became a burden. Is that tough stuff? Hell, yes! I know Kristymarie. I’m sure she did say that. And a few other choice words. You’re such a potty mouth, Kristymarie. Shame, shame, shame!

Seriously, though, my recall of the debate about role models led me to think about “the box.” Can you guess what that is? If you’re a student of color, you’re all too familiar with it: the box on the law school application where you can choose to check off an identity, such as “Hispanic” or “African American.” But the box is much more than a space you can check. The subtext of the box is far more important. What “lies beneath” the box is the violently complex world of affirmative action. What lies beneath are questions of legitimacy that surround being a role model, especially if you don’t abide by the duties of the title.

And here’s the thing: It really doesn’t matter if you actually checked it. Because of its existence, if you’re a student of color you’ll always be asked, in words or even in a look, “Did you check the box?”

Here are points when the question typically comes up. First, if you did check that box, I can assure you that faculty members sitting on a admissions committee will look at your whole application to see if you’ve done something for your Latino/a community or you otherwise show your “Latino/a-ness.” If you did check the box, and there’s nothing in your file about the duties you should’ve fulfilled, then why did you check the box? Are you a legit Latino/a? Hmmm…

And then you get to law school. The Latino/a student group tries to find all of the Latino/a students. They track you down. They want you to participate in the group’s activities, from periodic meetings, to bake sales, to volunteering in nearby Latino/a communities. You don’t want to be in the group, either because, say, they take political positions you’re not comfortable with or, more likely, you’re freaked out by, and are having episodes of projectile vomiting because of, the crushing amount of school work. Some of the students in the group look at you, eyebrows raised. Did you check that box? Why aren’t you fulfilling your duties? Are you a legit Latino/a? Hmmm…

Then you find yourself in class. You’ve always been quiet in class. And consistently gotten the highest grades in your courses prior to law school. There’s no box on the application that says “loudmouth” or “future gunner,” a term coined by students referring to students who can’t wait to be called on and dominate class discussion, usually with incredibly useless things to say.

Every time the class covers a case involving minorities you’re expected to say something. You don’t. Some white students look at you. “C’mon, say something!” they say to themselves. “She must’ve checked the box to be here.” You’re not fulfilling your duties. Are you a legit Latino/a? Hmmm…

It might not even get that far. Are you a legit student at this law school? Should you be at a lower-ranked school? These questions become more intense as grades are posted. It gets around that students of color on average got lower grades than their white counterparts. A student of color finds a post-it in her carrel: “You don’t belong here.” Or an African American finds a banana in his school folder. (This actually happened at American University recently.) Never mind that there are credible reasons for the disparity that have nothing to do with intellect and academic prowess. Have a look at one of my posts regarding document review.

Back to the classroom, the prof looks at you and wonders why, as Kristymarie observes, you’re not fulfilling your duty of bringing diversity to the learning environment, a goal the Supreme Court says schools can take into account, but very carefully, when considering race in admissions.  Are you a legit Latino/a? Hmmm…

Or maybe you decide to be vocal, but not the gunner type. Do you become racialized and/or gendered, as Kristymarie suggests? Do other students of color look at you as a suck-up, a Tio Taco, the equivalent of an Uncle Tom? Is your sense of duty messed up? Are you a legit Latino/a? Hmmm…

Then you meet with a prof in her office to discuss careers. You tell her that you’re from a small town in Texas. She tells you how admirable and important it is to work for a non-profit back “in your community,” helping disadvantaged Latinos/as. You tell her you’re interested in corporate law and want to practice in New York. She looks at you with a mixture of confusion and disappointment. “When I was on the admissions committee two years ago and had to review an insane number of applications while trying to watch Game of Thrones and eat my kale salad with walnuts, mandarin oranges and a touch of honey mustard dressing, I only voted in favor of students of color who checked the box and had strong ties to the community,” she says to herself in a really long sentence that triggers a migraine. Where’s the duty to your community? Are you a legit Latino/a? Hmmm…

I’m going to stop here. It’s your duty to think about this stuff. It’s my duty to pause Game of Thrones now and work out at my gym. Get sweaty. Yeah, TMI. Deal with it!

If you want to chime in on this stuff, there’s a comment box for your use. We’ll continue this conversation in my next post about Kristymarie’s article.

Wheelchairs + Tennis = Life Narratives #8 The Roulette Wheel of Hideous Misfortune

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The flight to Kansas City was pretty smooth considering the likelihood of a choppy flight in the spring. I was on my way to the First Annual “Wheel It Forward” Tennis Tournament, an indoor tournament at the Northland Racquet Club in Kansas City from April 10 through 12. It was a small tournament with eighteen participants, a radical difference in numbers and “feel” from the Cajun Classic I had played in a month before.

Some wondered why I would spend money to go to a tiny tournament in the Midwest with no history of success. I wasn’t sure why, either. I knew I was crazy about playing wheelchair tennis. I suspected I would have a better chance of winning a game or two at a small competition. And the big draw was meeting the legendary Nick Taylor, a top-ranked quad player who serves the ball with his foot.

But it wasn’t until the end of the tournament, and after I had met and talked to some of the people involved that I realized what I had stumbled upon: a confluence of individual narratives that, while marked with trauma, gave rise to life-affirming possibilities, the kind of possibilities that so many around me in the summer of 1980 clung on to as I battled death.  We begin this story with one Brian McMillan and his motorcycle.

Brian’s Narrative

Raised in Austin, Texas, Brian grew up in a “tennis family.” Everybody played, from his father, who flew planes in WWII, to his two older siblings. Tennis was all the rage in the 70’s, and Brian was caught up in it, playing tennis for his high school. “I was okay, but not great.”

Brian moved to Kansas City in the summer of 1991, where he went to grad school at Kansas State and received a Master’s degree in landscape architecture. After he graduated he worked for architecture and civil engineering firms doing land development.

But work was work. Brian’s passion was motorcycles, from BMWs to beautiful Italian bikes, at one time owning three powerful road machines. He didn’t ride every day, but when he did, he road with a purpose, finding roads with plenty of twists and turns. For Brian, who often road with his brother, Walter, there wasn’t a bad road in Arkansas to do what Brian called “technical riding.” Brian even went to riding schools. And he played it safe—or so he thought–faithfully wearing gloves, a helmet, a protective jacket, and boots.

Brian didn’t give up on tennis. After moving to Kansas City, he joined the Northland Racquet Club to participate in a “hit and run” clinic held every Saturday morning. A handful of people regularly showed up and Jim Pfeiffer, the club’s tennis pro, ran the clinic.

Life was good for Brian. He pitied people in wheelchairs. How could life possibly be good for them? Whenever he saw someone in a wheelchair, he said to himself, “Oh man, dude, your life is over.” He figured “they were barely limping along and just getting through life.” He didn’t know anyone with a disability. He just thought it was bad luck. He called it “the roulette wheel of hideous misfortune. The ball lands on your number and you can’t believe it.”  He, like most of us, thought the ball would never land on his number.

But on May 31, 2002, it did. On that day, a Friday filled with sunshine and scenic beauty, Brian, age 44, came face to face with the hideous misfortune he so loathed.

The road to Brian’s misfortune began when he and Walter, who lives in Austin, Texas, planned a four-day weekend to ride on state highway 125 that runs through the Mark Twain National Forest in southern Missouri. Brian had ridden the twisty highway before and he wanted to introduce the adventure to Walter. They agreed that Brian and his wife, Donna, would meet Walter and his friend, Pat, at a halfway point, Eureka Springs, Arkansas.

They arrived there Thursday afternoon, May 30th, and had dinner in the Ozark Mountains. After breakfast in the morning, they hopped on their motorcycles and road for several hours. It was a beautiful, sunny day. A gorgeous day to ride. Walter took the lead, Pat the rear, and Brian and Donna the middle.

It happened at about noon. Brian powered his bike on a twisty turn and it hit a patch of gravel or sand. The bike flew out from under Brian and Donna. She rolled into a meadow and suffered at most a skinned knee. Brian wasn’t so lucky. He slammed into a tree. Pat raced ahead to bring Walter back while Donna search frantically for Brian. She found his broken body in the bushes near the tree.

Brian woke up in the ICU ward of St. John’s Hospital in Springfield, Missouri, having been medevacked there minutes after the crash. A morphine drip dulled the pain, the pain of a spinal cord injury that left him a complete paraplegic. Donna was devastated. They had been married only eight months before the crash. She cried herself to sleep and woke up thinking it was all a nightmare. But it wasn’t.

Brian spent seven weeks in hospitals to allow his broken scapula and clavicle to heal. Once the bones mended properly, he began his ride back to daily living by doing the arduous work of physical rehabilitation–learning how to live again without his legs. For four months, first at an outpatient clinic in Kansas City and then at the Chicago Rehabilitation Institute, Brian spent long hours working on his upper body strength, doing all sorts of exercises on mats, navigating parallel bars, lifting weights, getting himself off the floor and into his wheelchair, and using a “transfer board” to move himself off of his wheelchair and onto something else, say, his bed.

Brian returned to his home in Kansas City in September, 2002. He and Donna lived in a 1,200 square foot loft in a converted four-story coat factory. A 1925 Otis elevator serviced the building. Not too much was required to accommodate Brian’s wheelchair. They brought the bed down from the raised platform bedroom area Brian had built and replaced the bathtub with a roll-in shower. Donna, who worked in a hospital, took an extended leave of absence. His mother, Patricia, and Walter came from Texas to be with them.

But then came that inevitable day when Donna went back to work and his mother and brother returned to Texas. That’s when the enormity of it all hit Brian, almost as violently as his impact with the tree: He was alone. In a wheelchair—for the rest of his life.

Brian hit bottom when one day he attempted to use his transfer board and fell to the floor. Three months earlier, had he fallen on the floor, he would’ve hopped back up on his legs and thought nothing of it. Now his legs were dead to him.  And no one was around to help him.

He pissed on himself. “I’m fucked.”

“There’s no second chance,” Brian told me. “You can drop out of school and go back again. You can get divorced and marry again.”

“The roulette wheel of hideous misfortune.”

Wheelchairs + Tennis = Life Narratives # 7 A Holocaust Survivor, Torture, and Profanity

Chapter Three

Kansas City’s “Wheel It Forward”

         When you think about it, life is an experience of individual narratives that live and breathe in collective spaces. Sometimes those spaces can be dark, violent, and hopeless. But others offer the light of grace, peace, and human potential. Sometimes we can choose the spaces to inhabit but many times we can’t. The spaces choose us. Some might call that fate, while others see it as pure luck. Maybe it’s a bit of both. Regardless, the critical question is whether you, with the help of others, can push yourself through the dark spaces you might find yourself in and find the door to the spaces that celebrate life.

******

I didn’t choose to inhabit the space of the ICU. I didn’t choose to be part of the ICU’s narrative. Not as a patient, at least. But there I was, the puzzle that had to be solved within a narrative that, as I’ve said, includes a range of characters, each playing their roles, each bringing their own narratives to the ICU.

The minutes turned into days for the puzzle, the days into weeks, and the weeks into months in the ICU. Every day was a ritual of what I’ve called “micro-hope.” Not the grand plans of a life narrative, but the hope of just getting through the day, hoping that on that day there would be some sign of the reversal of my paralysis as the myelin sheath would start to repair itself and allow my brain to communicate with the rest of my body, starting at the top. (GBS starts at the extremities and moves up; when movement returns, it comes back in the opposite direction.) I didn’t ask for much. A barely perceptible movement of a frozen eyelid would’ve made me deliriously happy. But on that day my micro-hopes would be dashed. The ritual would resume the next day, and the next, and the next, and the next.

Just about every day, Doctor Wisen, my neurologist and a major character in the ICU narrative, came to my bedside to inspect his puzzle, almost like a coroner inspects his corpse. Whether by voice or visage, he showed little emotion, as if doing so would jeopardize his much-prized “I’m-a-genius-neurologist-who-is-dour-by-nature” bedside manner. But what was his subtext, what was beneath that man in the white lab coat? Why was he so inscrutable, so aloof?

Maybe this is why, at least in part: Mark Wisen was born in 1934 in Lublin, Poland. A Jew, born in Poland, in 1934. You know where this is going, right? He and his mother survived the Holocaust and emigrated to South Bend, Indiana in 1950. South Bend? Why there? Because one Frederick Baer, Esq. lived there. He was Mark’s mother’s cousin who became a Nuremberg prosecutor and made it his mission to find relatives who survived the Shoah.

Studies have found that Holocaust survivors are remarkably resilient and lead pretty stable and successful lives. Mark became an accomplished doctor and enjoyed a loving marriage. But the horrific trauma suffered by survivors lurks deep within their psyches. They’re pretty good at keeping it there. But sometimes trauma surfaces violently and causes havoc with devastating consequences. I know this. Dr. Wisen knew this. How do we cope? In many ways. Including being inscrutable, aloof.

And there he was, a Holocaust survivor born Lublin, staring down at a young man born in Chicago, in the ICU of Bloomington Hospital, being tortured day after day. The most he could do was monitor the dosages of steroids, and poke and prod to see if any part of his puzzle would react. Nothing.

That I was being tortured is not an overstatement. Think about it. Counting every second, every moment, every hour, every night, and every day. Being totally paralyzed, I mean totally paralyzed, blind because your eyelids are taped shut to protect the corneas. . . But here’s what made the torture exquisite: I was totally aware of everything and I felt everything. I was aware of the tangle of tubes I was hooked up to. I was aware of the constant beeping of the heart monitor. I was aware of the endless needles being stuck into me to draw blood. The worst was checking my “blood gas,” or the arterial blood gas draw to see, in essence, how well my lungs were functioning in terms of oxygen and carbon dioxide. I dreaded the nurse who came into my room and uttered those words because I knew she would stick a needle deep into my wrist to find the radial artery. It was excruciatingly painful, especially when the nurse couldn’t find the artery and would probe my wrist relentlessly.  To the onlooker, I was a body at peace, the peace of complete paralysis. But inside I was screaming at the top of my lungs.

And, of course, I was aware of the ventilator that unfailingly kept pumping my lifeless lungs with oxygen. It became my friend, in a weird way, the rhythmic sound of the pump assuring me that I would not suffocate. But there were times when, because of fluid buildup in my lungs, I didn’t feel like my friend was giving me enough of what I needed from it. I needed more oxygen, immediately, I felt. Suddenly, my friend had become my executioner, putting me to death as the heart monitor’s beeps ticked away my last moments on this earth. “Please, I want to live! Please! Someone! Help me!” When my eyelids weren’t taped down, my eyes would bulge and move wildly in my sockets. I recall on one occasion a nurse happened to be by my bedside when I was in the throes of suffocation. She said pathetically as she rubbed my arm, “Oh, honey, what’s the matter?” “I’m fucking dying, you idiot! Get your hand off of me and do something!” “Poor thing. . .” “Fuck you!”

But the truth of it is that the nurses worked as a team to keep me alive. They were there 24/7 working in the trenches of the ICU narrative to do everything possible to help me survive, constantly assuring me that survival was worth it. They did everything to preserve my body while I was helpless. To prevent bed sores and fluid buildup in my lungs, every four hours they came into my room and turned my body, from laying on my left side, to on my back, then on my right. They fed me through my g-tube, emptied and measured my urine bag, emptied my bedpan, gave me my medications, and kept me clean: sponge baths, so humiliating—I had no “private parts.” And periodically throughout the day, a nurse would go through a range of motion routine, moving my arms and legs around in various angles to prevent my body from freezing up like rigor mortis. A seemingly dead body, but alive inside. Despite having to cope with trauma in their lives, they clocked in every day, came into my room, and told me I wouldn’t die, not on their watch.